The Téléthon Luxembourg
supports research projects and patients in the field of rare and neuromuscular diseases.
The Telethon, an activity of the Fondation Lions Luxembourg, whose objective is to help those in need, is under the aegis of the Lions Foundation. The Telethon team makes its own decisions and manages its own activities, but it is the Foundation that is legally responsible for the Telethon in Luxembourg.
The birth of the Telethon
In 1993, F.H. and T.L., two Franco-Luxembourg artists, one of whose relatives had Duchenne muscular dystrophy, were inspired by the recent creation (1987) of a Telethon in France, and wondered whether they should not take a similar initiative in Luxembourg.
They were going to contribute actively to this action, by making available some paintings and by creating an art calendar to be sold 'for the benefit' of the Telethon.
Lucien Schweitzer, owner of an art gallery in Luxembourg, agreed to publish this calendar printed by Imprimerie Centrale and proposed to his Lions Club, the "L.C. Gehaansbierg", to engage in this way, faithful to the Lions motto "We Serve".
Thus the decision was taken to organise the first Telethon in Luxembourg in 1993.
ALAN aims to improve the quality of life of individuals and families affected by a rare disease
There are more than 6000 different rare diseases. Many of these diseases are genetic, chronic and progressive. Rare diseases have an impact on quality of life and can reduce life expectancy.